Fundraising News


Bardet-Biedl Syndrome UK has seen an active and diverse year of fundraising and the committee and members continue to be very grateful to everyone who has contributed. The charity relies heavily on these stoic efforts and the money is used in so many ways, from providing support and advocacy services and  producing information to subsidising our annual family conference; a weekend valued by so many people, especially our members who have BBS.

One of our members, Tom Oates, turned 18 in March 2015. He enjoyed a great party with family and friends and chose a ‘no presents’ policy. Instead he asked for donations to BBS UK and collected a fantastic £933.00.  Well done Tom and many happy returns

Vera Scudder, grandmother to Zac, one of our young people who has BBS, sent us a cheque for £903.70. She is a member of RBS Bowls Club and they had chosen BBS UK as their nominated charity for fundraising this year. Vera said “Everyone has been very generous and I’m delighted to send you this amount... I’m so pleased to help such a deserving charity”. 

We received a cheque for £230.93 from Norton Webb Ltd who held a ‘bring and buy’ sale.  They said, “we had great fun with a ‘bring and buy’ for our staff where, not only did we raise funds for you, we got to recycle our pre-loved clothing, bags and shoes and buy second hand bargains donated by our colleagues. We know from one of our employees that you do very valuable work in supporting the families of those with BBS and we wish you all great strength going forward”. 

In November Danielle Sales, who has BBS completed 80 lengths of her local swimming pool in Tonbridge, Kent, raising a fantastic £800.  Well done Danielle you are a star.

Peter and Jane Taplin of Bishop Monkton, North Yorkshire, once again generously offered to open up their garden and model railway on Spring Bank Holiday Monday, this raised £280 for us. The Taplins have now raised around £2000 in total for the charity, amazing!

In addition to these fantastic efforts we have had donations from the Community Trade Union (£250), Recycle For Charity (£10.35) and from Carol-Anne Howes (£200) among many others, we are so very grateful to you all.

The committee would like to thank everyone who has made a difference to the Charity by raising money over the course of the year – you are all heroes!

Please keep me posted of anything you are doing to help us along!

Emma Oates


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