Friends of BBS UK

As a small but national charity, supporting over 500 people with BBS and their families and carers, BBS UK relies solely on fundraising, donations and grants to fund their work and the amount of income determines the information and support they can provide each year.  The BBS UK annual conference, newsletters and leaflets cost a great deal to produce and the charity is finding it more and more difficult to raise the funds needed to ensure future activity and growth.

Like most charities, financial stability relies on regular donations and we are often asked why we don’t charge for membership to BBS UK.  This would indeed provide that much needed regular income, however it has always been our policy that membership is entirely free to ensure that everyone who needs our support is able to access it.

Examples of support we have been able to provide this year:

• Helping a family get the benefits they were entitled to
• Assisting a young person to get a buddy so that they could get out and about
• Ensuring a family who were struggling with a new diagnosis receive regular support


Several years ago, we set up ‘Friends of the LMBBS’, now ‘Friends of BBS UK’, a fundraising initiative, giving those members who wished to regularly support the charity, the means to do so and we have slowly built up a small, loyal band of ‘Friends’ to whom we are very thankful as they help us to continue to provide the much needed support and information.

If you or someone you know would like to become a Friend of BBS UK, it couldn’t be easier.  Simply complete the enclosed form and return to the address below. There is no minimum, or maximum amount you can give each month.   If fifty ‘Friends’ completed a standing order for just £5 per month, the income of BBS UK would increase by £3,000 per year! That would make a big difference to a small charity!  Of course you are free to start and stop the Standing Order at any time, as you remain in control.

If you feel you would like to become a 'Friend', but would like more information, please contact Christine, who will be pleased to assist you.

Christine Saxon                                                                                                                                                                                                                                                                                                                                                                                 



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